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Showing posts with label Sarcoidosis. Show all posts
Showing posts with label Sarcoidosis. Show all posts

Sunday, January 21, 2018

When You Think your ready to go back to Full Time but Your Body has a different idea

I have been unable to work Full Time since July 2015.  I am still with the same company I was at when I had to leave. I have been feeling so good lately that I started thinking of going Full Time. However, my body had other ideas.  I woke up sore and unable to move. A sign to me that my illness was in full stream. So I sucked it up and I rested. I spent the entire day in bed and cancelled my bible study.  This is extremely difficult because I continue to struggle financially and between January 2018 and the extreme cold and my body rebelling it makes it even harder for me to not struggle.


I love my job and have done it for a long time but in 2010 I became ill with a disease called Sarcoidosis.  I went to the Emergency Room with abdominal pain and had a CT Scan.  The doctor came back and told me and my mother that I had cancer.  This started a long 8 year journey including two different attempts to get SSD.  The first time I applied I had to do this in order to qualify for Medical Assistance. I was turned down twice.  I did not reapply again I went out and contacted my present Supervisor and I was offered a job.  I have known her for years because I worked at her site when I worked for the Temp agency.


In March of 2015 I passed out at work and needed to go to the hospital Emergency Room. They told me that I had Kidney Stones and my heart was not working right that I was having a Silent Heart Attack. I was in the hospital for three days and that began the second nightmare with this disease.  I spent the next several months  going back and forth to the doctors and praying I didn't have to quit. My immune system was failing and the doctors didn't think I would be able to make it through another Winter working with so many people.


I quit my job on July 10,2015 and my last day was on July 24, 2015.  I kept in contact with my Supervisor and she offered me a job as a Casual Employee. I was thrilled to be back at my beloved Southwell.  I am only allowed to make $1180 a month in order to qualify for Social Security which makes things difficult for me.  I will not live with a complete stranger because you never know what kind of drama people in the hood may have.  I'm not trying to get shot because my roommate has drama.


I will continue to live under or at the amount needed and pray that my decision from my appeal is positive and I will be getting a monthly check. If I am denied then I will reapply and pray that it doesn't take another two years before I get a final decision.  With Congestive Heart Failure I doubt it will be hard. The Tough part is to not push myself to hard and remember to not go over the limit of what Social Security sets.